so I had this revelation a while ago that I might have either EDS or some similar hypermobility, because of things I remember doing as a kid that seemed perfectly normal but apparently aren't, but how the fuck can you tell because I'm basically immobile so any hypermobility tests wouldn't work
...today my mom comes in and we're talking and she mentions something for me to look up... "aylers denforth? I think it's a-h-l--" and I go "e h l, actually. ehlers-danlos." "?????? how do you know about it?" "I have friends that have eds."
and anyway it turns out that, like
both of my mom's sisters have been diagnosed with eds
and several of my cousins on that side
and her mom
and she might have it
and I just kind of lost it laughing
(and then I had to explain why)
but yes. Probability that I actually do have EDS just ratcheted way up.
Y'all know how I always want all the Windows latest and greatest, right? So like a fool I installed Windows 10 Build 10074 on my laptop about a month ago. I have to say I loved me some 10074. The Start Screen was priceless and everything seemed really good. So when the new build came out (10122) of course I jumped on that, too, thinking "10074 good, 10122 better!". But it is not. The 10074 Start screen I once adored is gone. Instead of a long strip of a menu along the left and a perfectly centered set of Metro-style tiles I now have an off-center set of strangely even larger-looking Metro-style tiles, and no long strip of a Start menu at all.
So how does this confooblery come about? Well, I can't explain why MS messed with something perfect, making it decidedly less so, but I can explain that there is now a hamburger icon in place of the long, lean, left menu. Click it and poof! the left menu drops down out of nowhere. But won't stay...it can't, it's got a hot date. So as soon as you leave the Start screen for a desktop or applet or whatever, you have to click the hamburger icon again to re-access the (very busy) missing menu. This is what I call "hell", and I feel similarly about MS devs right now as I did when I wrote this and this about the devs over at Mozilla.
That was just the beginning of my problems with Windows 10, though. Unfortunately, I also put it on my phone, which was running the 8.1 Denim update before I shifted it over. Denim ran like a monkey with its tail wrapped around its neck...much slower than 8.1 Cyan, with no redeeming features to make the so-called upgrade worth the resulting slowdown (and that was without getting to try the "Hey, Cortana" feature I've been pining away for). So as I'd become a Windows Insider on my phone, anyway, just to get Denim, I figured what the hell...rather than roll back to Cyan, I'll try out the latest Win 10 phone build.
Before I start bitching about it, let me deliver a stern lecture to Win 10 phone devs - you had better unbarf-up all the things wrong with it because I really love this OS. I can't help that it self-destructs within a few hours, forcing me back to using Win 8.1. But you guys can make it stop self-destructing by its hopefully mid-summer release so I can try it out again. Because the way it looks, feels, operates and what it offers is all absolute genius compared to 8.1-anything but it's so damn buggy right now you basically can't use it at all.
Onto everything wrong with it...
- A lot of settings are hidden (go to Settings, search, type the letter "A", hit the back button, scroll down for an alphabetical list...it's the only way to find everything)
- The Start screen has once again been tampered with, making the tiles slightly bigger and much more ugly in some subtle way I can't quite explain
- Your first inkling the Win 10 phone OS will completely self-destruct is the bluish-black "Loading..." screen when you try to open any app. If you see this baby just once then get a Recovery Tool and start rolling back. I could've saved myself hours of confusion and mind-numbing grief if I'd only known. But no, of course I had to learn the hard way.
- Your other inkling of imminent OS self-destruction? App crash. As in...all of them. It started, as most things in the world of Windows do, with IE crashing. Oh, a mere IE crash...how routine. An IE crash cannot make me blink. 29 consecutive IE crashes might make my lids pop a little, but hey, I was raised in the old school of "Did you try restarting it?™" a registered Microsoft trademark. Us trained restarters know everything will go wrong with Windows but restarting will fix damn near all of it. (If not, then it's a virus.)
- But after six restarts all the apps crash and shit ain't funny anymore. Like my phone app is crashing now. Can't make calls. Settings are crashing. Can't change settings. After an hour or two I got freakin' scared, y'all...I need a fucking phone that actually dials numbers.
- So *sigh* like a fool I tried the "reset" button buried deep I don't even know where anymore within Settings (yes, after restarting my phone endless times just to get Settings to no longer crash). When the phone finished resetting an hour or so later it no longer had a phone app. Or a Messaging app. Or a Settings app. Or any of the stock AT&T apps. Or any of the Lumia apps. There was only one tile left on the Start screen (IE, wouldn't you know it?) and maybe six apps in the App folder, none of them related to making a phone call or sending a text message or using email in any way, shape or form. And Cortana, who never worked before I reset the phone, had also left for greener pastures.
- Now I was terrified, so I got online, got the Lumia Recovery tool, and I seem to have 8.1 back in working order. But if Win 10 for phones would just work (and not be the fastest and most vividly spectacular example of "vaporware" I've ever witnessed) I would cling to it forever.
So yeah, I'm distressed right now. I swore I wasn't going to perform any of the above hijinks in a previous discussion but, as usual, the "Don't touch the wet paint" signs have got the best of me.
(La la la, I mean, I'm totally editing the fic I post in under a week. Yeah, that.)
No, no, no, no.
I was on the verge of deciding to stay behind because I couldn't force myself to choose. I had Bear cradled in my arms and Gidget, Jesse, and Sam all in front of me. And that's when I woke up.
I immediately went and cuddled each kittycat in turn. They're all my favorites, for their own reasons. I know I'm not the only one who would break down at a decision like that. Nope, even in a dream, can't make me choose.
This time I shall remember to give advance warning to those of you who aren't on the book of face (or if you are on the book of face and haven't been invited then prod me, I'm sure it was just an oversight due to rubbish interface). The next Nails and Cocktails afternoon will be on the 5th September. Delicious cocktails, fabulous nail art, and splendid company; what's not to like! Put it in your diaries now, and I'll post a reminder closer to the time.
My mother, who had been great up to that point (and as we know is generally great these days), said something to the effect of "Ugh, I don't think it's fair that any one group should get the monopoly on bits of clothing and what they mean."
That's the context; this is my attempt to put my thoughts in order enough to e-mail her an explanation. (It's extremely focussed on the context of choosing to make legible otherwise invisible characteristics; obviously I'm leaving a very great deal out for the sake of Explaining Stuff To My Mum.)
( Read more... )
Anita Heiss's Tiddas, as mentioned before.
Courtney Milan, The Governess Affair and The Duchess War. I liked them both, and will read more.
Lia Silver, Prisoner. This is the sequel to Laura's Wolf. I liked it, especially the hero's taste in music. I did keep wondering why DJ had never been dxed with ADHD in addition to his dyslexia. Maybe that's in the next book (which I've already bought and will probably get around to reading soon.)
And I'm rereading Ancillary Justice, to no one's surprise at all.
And I've made some more progress on Margery since last time I updated. I'm just gonna quote my own Twitter:
@vassl: Back to reading Margery Kempe. She just begged her confessor to let her kiss lepers. He says she may NOT kiss male lepers. Lady lepers ok.
@vassl: So she runs up to women with leprosy, gets down on her knees, and begs them in Jesus' name to let her kiss them on the mouth.
@vassl: Can you imagine being afflicted with both leprosy AND Dame Margery? She kisses them, cries, & splains how lucky they are to have leprosy.
@vassl: "stirred them to meekness and patience so they should not grudge about their sickness," jfc, how did this woman not get punched?
@vassl: Margery's latest wish: to be naked on a hurdle while men stare at her and pelt her with mud, for Jesus, SO LONG AS IT DOESN'T IMPERIL THEIR SOULS.
[n.b. I didn't have enough characters to articulate that "mud" is maybe not precisely what she wanted to be pelted with.]
@vassl: She follows this up with "May your wish be fulfilled, not mine," possibly aware that Jesus' imagination is way less... intense than hers.
Comics and Manga
Read the three Young Avengers tpbs from the 2013 reboot. Ridiculous in a good way. I felt like I was missing a lot, and like the creative team were really shoving the whole concept of Millennials down my throat (exhibit A: the entire page formatted like a Tumblr dash) but it was fun.
Went on a Polly/Mal (from Monstrous Regiment) kick and read nearly all of that tag in AO3. I really love the nonbinary Mal fanon.
TV and Movies
Finished the first season of Parks and Rec.
As mentioned, played CAH with friends.
Have been obsessively playing Dots.
Still sporadically playing Pokemon: LeafGreen. I got all the badges and am working on Victory Road Cave.
And tonight I did my first play-through of Hatoful Boyfriend. My character (who is a human girl aged about 15 or 16) ended up romancing her maths teacher, who is a narcoleptic button quail. I disapprove.
I'm looking forward to playing more and finding up what the sinister subtext between him and the scary patridge doctor was about.
Listened to Amy Ray's Prom (loved it, as expected), Men Make Music's Labor (too dance clubby for me, but still good,) and CN Lester's Ashes (liked, think it will grow on me with more listening.
Mainly have been listening to Rachel and Miles X-Plain the X-Men and Kevin and Ursula Eat Cheap.
Got around to setting up the sewing machine and sewing the new cushion covers I bought the fabric for late last year. I was incredibly sloppy about it and just used white thread for everything and called it a feature, because I'd been procrastinating all year and was too inertia-less to do it if I had to stop one more time.
And tried again with the glitter stencil journal thing, and this time succeeded. For a slightly Pyrrhic value of "succeeded" in that I'll never, EVER stop finding little bits of green glitter around my flat.
( pics )
Repotted the lavender (which is still alive but only barely,) planted the tulip bulbs and some of the daffodil bulbs. Ran out of potting soil, will need to go get more so I can plant the rest of the daffodil bulbs and repot the catnip, which is flourishing. Parsley also seems happy enough. Basil is barely alive - it's a cold autumn.
Judith Tarr, A Wind in Cairo: I think overall I liked the premise of this one (guy gets turned into horse, falls in love with rider) more than the execution. There were a lot of big complicating plot elements (like, uh, history) and a massive sideplot involving one of the main character's servants and overall it was a little more rape-y than I would have wanted. But the setting was nice, and the main plot was decent; it just got kind of muddled.
Judith Tarr, Writing Horses: The Fine Art of Getting It Right: I read this in case there was anything valuable I needed to know about horses that I had forgotten, in order to write about centaurs. It didn't really help me, but it's a good reference if you need to write about horses.
What I'm Reading Now
A-Force #1: The all-female team is awesome. Sharks were punched. You can't really ask for more than that. I'm going to have to keep reading. And possibly backread She-Hulk, Captain Marvel, Young Avengers, and Runaways. Yeah, yeah. So many comics. What with the massive ensemble cast I feel like it's really too early to see them meshing together, but this is a promising start.
Planet Hulk #1: Steve is a GLADIATOR and with his friend DEVIL DINOSAUR (who is, you may recall, A TYRANNOSAUR) he goes to the vast and trackless wastes full of HULKS in order to FIND BUCKY. (I mean, he is Steve Rogers, after all.) I'm not sure this is going to hold my interest for very long, because there are a lot of things I like about Steve as Captain America specifically (justice, freedom, blah blah) that are absent in Steve as a gladiator. And I am not a big Hulk fan. But, on the other hand, DINOSAUR.
Secret Wars: Battleworld #1: Meh. Do you want to see fights? There are fights. It's an anthology of fights. I guess the MODOK one was cute. I mean, if the main draw of Secret Wars for you is "many people punch each other in the face" this is probably good to pick up.
Ultimate End #1: OMG OMG OMG. Okay, so this marks the end of the Ultimate Universe, and, since I finally read a bunch of Ults, I have become rather fond of the characters, much to my surprise. Earlier this week on Tumblr I made a big post about why I like Ults Steve (to which Teaberryblue added additional commentary). So I was pretty excited for this. ( Spoilers... )
What I'm Reading Next
Naomi Novik's new book. I actually just started it! It looks pretty good so far!
( Memories in Words )
The described pictures below show Lucy the Australian Cattle Dog of my heart. She's a medium-size bitch, one ear pricked, one ear folded, black spectacles around her eyes. When young she had a black and brown muzzle, with large black, brown, merle red, and merle blue patches.
( Memories in Photos )
Give your animals and humans one more hug or kind thought or treat tonight.
*(She wasn't acutely ill, but she was rapidly losing control of her bladder, bowels, and rear legs and she was often in pain.)
...which is when it changed to a TZ episode. As it turned out, if you accessed the rink through the sub-basement area, you could change reality. And the place as a whole was run by an old rich guy (who looked a lot like ... uh, the evil rich guy in It's a Wonderful Life) with three employees, a sort of golden child (I don't know whether he was literally the guys son or not) who was an obnoxious annoying jock, a black guy named Sam who was actually really smart but never got listened to, and a third guy named Michael, who had been trying without success to convince the boss of Sam's worth (and jock-guy's lack of same, because he was good at being offensive but bad at running a business). So Michael and Sam came up with a plan to body swap Sam with the annoying jock dude, so that Sam could actually make a difference; except when they got upstairs the boss had apparently changed his mind and was favoriting Sam -- aka annoying jock guy in Sam's body, who was aware of what happened and was just smirking at the other two) -- and Sam in the jock's body started arguing that he was really Sam, but the boss and jock!Sam just smirked harder. So Michael and Sam!jock decided to go back downstairs and re-swap back, but they had to wait for two aliens (that sort of looked like giant walking pickles with eyes) to to down first. And the elevator dinged but opened on a black empty shaft, and then whatever was happening downstairs caused the entire place not to have ever existed.
And then there was a Rod Serling voiceover wrap-up about being careful what you wish for.
(Even if you can't donate, I recommending refreshing the page from time to time; it's comforting watching the total go up.
ETA: they're now into over-funding and hoping to get an ad in the Torygraph too.)
Also, you can sign https://you.38degrees.org.uk/petiti
The few people irl I've mentioned this talk to have been mostly indifferent; a lot of them don't know who she is, or why I wanted to go. People online seem to get it more. I don't know how much of that is that I'm more open about my own queerness, how much is that my friend base online skews a lot queerer (and disableder) than the people I know irl, and how much is just that y'all are awesome.
(I tend to be a lot more shy and ... conservative, not politically but in terms of pushing boundaries, plus I pass better for straight cis female? ... in meatspace. I don't look super queer or anything and am not brave enough to Come Out as Different. Which ... idk)
But anyway. Talk was awesome, LC is awesome -- and also apparently a fan of Brene Brown -- and I totally want to go back in time and give all the hugs to the kid she used to be.
...I accidentally Ancillary Justice despite having a ridiculous to-do list of fifty-one fairly major items all of which absolutely must be finished by Friday morning.
You know, I have a long, half-finished post sitting around that explores why I don't read many novels anymore, but really, the whole thing boils down to: when I'm reading a good novel, I make stupid decisions like ignoring the entire ridiculous fifty-one item to-do list to finish it.
Anyway, Ancillary Justice: SO GOOD. *chinhands*
So if you took Lord of Light, Sutcliff's Dolphin Ring cycle, The Left Hand of Darkness, the Alternian Empire from Homestuck, and most of Anne McCaffrey's FSP books, put them in a blender, skimmed off all of my favorite bits, and then reshaped them into something entirely new and wonderful, that would sort of begin to explain how I enjoyed Ancillary Justice.
I kind of regret not waiting until the whole trilogy was out tbh although probably better this way, for all I didn't need to spend that time on it this weekend I definitely didn't need to spend three times the time on it.
Here are some non-plot-related-but-possibly-spoilery thoughts under the cut:
( Shipping, ft. ships )
( On Radchaai gender )
I am totally going to have the two words "Anaander Mianaai" stuck in my head like a mantra for the next week. Thanks, Ann Leckie.
On Friday we wandered around for a bit. In the dealer's hall we found other toku fans. Lance hugged a fellow Shohiko shipper and I high-fived a fellow Kiva hater. She bought a bunch of Kamen Rider toys, for which I am judging her. There was a toku-year-in-review panel that was less dudebro-y than I was expecting. That night was the Scandal concert, for which I forgot to bring earplugs and wound up hearing everything at half-volume for an hour after it finished. Then Lance and I had pizza.
On Saturday, like I said, I was a cute Philip and Lance was a cute Shotaro. After the photoshoot we had lunch at a nearby hotel with Jane, who was a sport. Not as in "having a good sense of humor" (although that isn't false), but as in a huge sports anime nerd. Then we went back to the hotel and I napped because I'm pathetic. Lance got cake though :3 There were some more panels after that, including a disappointing R-18 fanfic panel that was not the "Let's talk about what makes a bad erotic fanfic" that we were expecting; it was entirely "let's grab some teenager's bad porn off Fanfiction.net and read it for laughs". And it wasn't even the so-bad-it's-funny kind. It was just boring.
Sunday was the last day, which means we didn't get to do a lot. Lance got Sailor Moon stuff in the dealer's hall and then we had to part ways with Jane which was sad :( Then we had Giordano's, which is awesome pizza. Then Lance's dad was a prick and made us follow behind him at 55 MPH the whole ride home, because car problems? I don't know. He called every five minutes for some inane reason or another.
Yesterday, while Lance was at work, I got my hair cut. The length you can see in those cosplay photos is way too long for my tastes. The hair dye was uneven, though, so there's some spotting.
I have another week here :3 It's going to be so much fun
Knitting bag number four.
No gardening today because it's been raining pretty steadily since last night. Fortunately, we've got some kindling inside, dry, so if we have to start a fire it shouldn't be too much of a pain in the arse.
Yesterday I did a bunch of dishes and emptied the bin and the cat litter. Today, the plan is to finish cleaning the bottom of the fridge so I can replace the crisper drawers. Maybe tidy up a bit too if I'm enthusiastic.
Condensing tabs is the internet task of today, and maybe cleaning my email inbox a little, since it's ridiculously backlogged and I mean hundreds if not thousands of unread things.
Parkin turned out a little too dark on top, but otherwise cooked through and tasty. Next culinary adventure - using up the feijoas and quinces. I've got a saved recipe for Feijoa Chicken Curry that sounds pretty tasty, and we have a packet of pasture-raised chicken drumsticks in the freezer we bought at the Farmer's Market last week. We just need to buy capsicum and allspice and then we can try it out.
There are dragons? I heard there were dragons. Now I have to pick a clan or something. How do I know what to pick. I just suddenly wanted a herd of virtual dragons and Dragon Cave wasn't cutting it. What am I actually supposed to do in this game? Are there things I should be doing/not doing? Is there a way that I am going to irrevocably screw up my game by not knowing what I'm doing? I worry about things like that, okay.